Health related quality of life following injury in low-and middle-income countries A review of measures and concepts
Main Article Content
Keywords
Injury, outcome assessment (healthcare), quality of life, low-and middle-income countries, Pacific islands countries and territories
Abstract
Introduction: Health-related quality of life (HRQoL) is an important aspect to consider when assessing the non-fatal impact of injuries. The aim of this review was to critically appraise the range of generic instruments employed in the assessment of HRQoL following injury in low-and middle-income countries (LMICs). As a prelude to subsequent research examining longer-term outcomes following motor vehicle crash injuries in Fiji, we also examined how commonly used measures align with the List of All Deficits (LOAD) framework for injury and the Fonofale model of Pacific health and well-being.
Methods: A systematic search of four databases was conducted to identify injury outcome studies undertaken in low-and middle-income countries (LMICs) that used a generic health status outcome measure(s). Two separate content analyses were undertaken, to assess how identified HRQoL measures aligned with the LOAD framework and the Fonofale model.
Findings: Thirty two studies from thirteen LMICs examined variably defined aspects of HRQoL following a range of traumatic injuries (e.g. spinal cord, brain). The measures most commonly focused on the ‘impact on individual’ aspect of the LOAD framework and the ‘physical and mental’ aspects of the Fonofale model. While the emerging literature from LMICs provides valuable information about the HRQoL of trauma patients, the commonly used generic measures provided limited insights regarding societal impacts, culture and spirituality, domains of relevance to injury research and Pacific health and well-being.
Conclusion: Theoretical frameworks relevant to Pacific contexts should be considered when selecting appropriate outcome measures for injury studies in the region.
References
1. Bullinger M. Measuring health related quality of life. Adamantiades-Behçet’s Disease: Springer; 2003. p. 113-22.
2. Centers for Disease Control and Prevention. Measuring Healthy Days. Atlanta, Georgia: CDC; November 2000. Available from: http://www.cdc.gov/hrqol/pdfs/mhd.pdf.
3. Kaplan RM. The significance of quality of life in health care. Quality of Life Research,. 2003;12(1):3-16.
4. Kaplan RM, Ries AL. Quality of life: concept and definition. COPD: Journal of Chronic Obstructive Pulmonary Disease. 2007;4(3):263-71.
5. Segui-Gomez M, MacKenzie EJ. Measuring the public health impact of injuries. Epidemiologic Reviews. 2003;25(1):3-19.
6. Beaton DE, Bombardier C, Guillemin F ea. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000;25(24):3186-91.
7. Guyatt GH, Feeny DH, Patrick DL. Measuring Health-Related Quality of Life. Annals of Internal Medicine. 1993;118(8):622-9.
8. Kildal M, Andersson G, Fugl-Meyer AR, Lannerstam K, Gerdin B. Development of a brief version of the Burn Specific Health Scale (BSHS-B). Journal of Trauma and Acute Care Surgery. 2001;51(4):740-6.
9. Basic Documents. Constitution of the World Health Organization. Supplement, October2006.
10. Namjoshi MA, Buesching DP. A review of the health-related quality of life literature in bipolar disorder. Quality of Life Research,. 2001;10(2):105-15.
11. Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and quality of life. Medical care. 1989:S217-S32.
12. Ivers R, Bhandari M, Norton R. A call to research: Documenting the non-fatal outcomes of injury. Injury. 2014;45(6):921-2.
13. Guyatt GH, Kirshner B, Jaeschke R. Measuring health status: What are the necessary measurement properties? Journal of Clinical Epidemiology. 1992 1992/12/01;45(12):1341-5.
14. Guyatt G, Walter S, Norman G. Measuring change over time: Assessing the usefulness of evaluative instruments. Journal of Chronic Diseases. 1987 1987/01/01;40(2):171-8.
15. Sethi D, Aljunid S, Sulong SB, Zwi AB. Injury care in low- and middle-income countries: identifying potential for change. Injury Control and Safety Promotion. 2000 2000/09/01;7(3):153-64.
16. Krug EG, Sharma GK, Lozano R. The global burden of injuries. American Journal of Public Health. 2000;90(4):523-6.
17. WHOQOL - Measuring Quality of Life [Internet]. WHO. 1997 [cited 21 July 2015]. Available from: http://www.who.int/mental_health/publications/whoqol/en/.
18. Both H, Essink-Bot M-L, Busschbach J, Nijsten T. Critical review of generic and dermatology-specific health-related quality of life instruments. Journal of Investigative Dermatology. 2007;127(12):2726-39.
19. Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment. 2001 2001/02/28;5(4):156.
20. Gholami A, Jahromi LM, Zarei E, Dehghan A. Application of WHOQOL-BREF in measuring quality of life in health-care staff. International Journal of Preventive Medicine. 2013;4(7):809.
21. Gill TM, Feinstein AR. A critical appraisal of the quality of quality-of-life measurements. JAMA. 1994;272(8):619-26.
22. Guyatt GH, Veldhuyzen Van Zanten SJ, Feeny DH, Patrick DL. Measuring quality of life in clinical trials: a taxonomy and review. CMAJ: Canadian Medical Association Journal. 1989;140(12):1441-8.
23. Lin X-J, Lin IM, Fan S-Y. Methodological issues in measuring health-related quality of life. Tzu Chi Medical Journal. 2013 3//;25(1):8-12.
24. Muldoon MF, Barger SD, Flory JD, Manuck SB. What are quality of life measurements measuring? British Medical Journal. 1998;316(7130):542-5.
25. Schmidt L, Garratt A, Fitzpatrick R. Child/parent?assessed population health outcome measures: a structured review. Child: Care, Health and Development. 2002;28(3):227-37.
26. Lyons RA, Finch CF, McClure R, van Beeck E, Macey S. The injury list of all deficits (LOAD) framework–conceptualising the full range of deficits and adverse outcomes following injury and violence. International Journal of Injury Control and Safety Promotion. 2010;17(3):145-59.
27. Russell L. Poverty, Climate Change and Health in Pacific Island Countries2009 1 Sep 2016. Available from: http://ussc.edu.au/ussc/assets/media/docs/publications/0904_pacificislandspaper_russell.pdf.
28. Pulotu-Endemann FK. Fonofale Model of Health2001 1 Sep 2016. Available from: http://www.hauora.co.nz.
29. New country classifications by income level: 2016-2017 [Internet]. 2016 [cited 31 August 2016]. Available from: https://blogs.worldbank.org/opendata/new-country-classifications-2016.
30. Hoffman K, Cole E, Playford ED, Grill E, Soberg HL, et al. Health outcome after major trauma: what are we measuring? PloS one. 2014;9(7):e103082.
31. Fourtassi M, Hajjioui A, Ouahabi AE, Benmassaoud H, Hajjaj-Hassouni N, et al. Long term outcome following mild traumatic brain injury in Moroccan patients. Clinical Neurology & Neurosurgery. 2011;113(9):716-20.
32. Nguyen H, Ivers R, Cuong P. Health-related quality of life and recovery patterns among hospitalised injury patients in Vietnam. Qual Life Res. 2018;27:619-29. English.
33. Salah Eldin W, Hirshon JM, Smith GS, Kamal AA, Abou-El-Fetouh A, et al. Health-related quality of life after serious occupational injury in Egyptian workers: a cross-sectional study. BMJ Open. 2012;2(6):e-000413.
34. Sudaryo MK, Besral, Endarti AT, Rivany R, Phalkey R, et al. Injury, disability and quality of life after the 2009 earthquake in Padang, Indonesia: a prospective cohort study of adult survivors. Global Health Action. 2012;5:1-11.
35. Ukpong DI, Ugboko VI, Ndukwe KC, Gbolahan OO. Health-related quality of life in Nigerian patients with facial trauma and controls: a preliminary survey. British Journal of Oral and Maxillofacial Surgery. 2008 6//;46(4):297-300.
36. Ham OK. Psychosocial factors associated with lifetime experience of serious unintentional injury in South Korea. Public Health Nursing. 2008;25(1):37-45.
37. Oh SJ, Ku JH, Jeon HG, Shin HI, Paik NJ, et al. Health-related quality of life of patients using clean intermittent catheterization for neurogenic bladder secondary to spinal cord injury. Urology. 2005;65(2):306-10.
38. Ibhrahim John M, Conway Devin, Haonga Billy T, Eliezer Edmund N, Morshed S, et al. Predictors of lower health-related quality of life after operative repair of diaphyseal femur fractures in a low-resource setting. Injury. 2018;49(7):1330-5.
39. Hampton NZ. Disability status, perceived health, social support, self-efficacy, and quality of life among people with spinal cord injury in the People's Republic of China. International Journal of Rehabilitation Research. 2001;24(1):69-71.
40. Hu X, Zhang X, Gosney JE, Reinhardt JD, Chen S, et al. Analysis of functional status, quality of life and community integration in earthquake survivors with spinal cord injury at hospital discharge and one-year follow-up in the community. Journal of Rehabilitation Medicine. 2012;44(3):200-5.
41. Hu XB, Feng Z, Fan YC, Xiong ZY, Huang QW. Health-related quality-of-life after traumatic brain injury: a 2-year follow-up study in Wuhan, China. Brain Injury. 2012;26(2):183-7.
42. Luo DY, Ding MF, He CQ, Zhang HC, Dai Y, et al. Bladder management of patients with spinal cord injuries sustained in the 2008 Wenchuan earthquake. Kaohsiung Journal of Medical Sciences. 2012;28(11):613-8.
43. Wen H, Reinhardt JD, Gosney JE, Baumberger M, Zhang X, et al. Spinal cord injury-related chronic pain in victims of the 2008 Sichuan earthquake: a prospective cohort study. Spinal Cord. 2013 11//print;51(11):857-62.
44. Xie B, Xiao S-c, Zhu S-h, Xia Z-f. Evaluation of long term health-related quality of life in extensive burns: A 12-year experience in a burn center. Burns. 2012 5//;38(3):348-55.
45. Asadollahi R, Saghafinia M, Nafissi N, Montazeri A, Asadollahi M, et al. Anxiety, depression and health-related quality of life in those injured by landmines, Ilam, Islamic Republic of Iran. Eastern Mediterranean Health Journal. 2010;16(11):1108-14.
46. Ebadi A, Moradian T, Mollahadi M, Saeed Y, Refahi AA. Quality of Life in Iranian Chemical Warfare Veteran's. Iranian Red Crescent Medical Journal. 2014;16(5):e5323.
47. Ebrahimzadeh MH, Kachooei AR, Soroush MR, Hasankhani EG, Razi S, et al. Long-term clinical outcomes of war-related hip disarticulation and transpelvic amputation. Journal of Bone & Joint Surgery - American Volume. 2013;95(16):e114(1-6).
48. Ebrahimzadeh MH, Moradi A, Khorasani MR, Hallaj-Moghaddam M, Kachooei AR. Long-term clinical outcomes of war-related bilateral lower extremities amputations. Injury. 2015;46(2):275-81.
49. Ebrahimzadeh MH, Soltani-Moghaddas SH, Birjandinejad A, Omidi-Kashani F, Bozorgnia S. Quality of life among veterans with chronic spinal cord injury and related variables. Archives of Trauma Research. 2014;3(2):e17917.
50. Elsherbiny OEE, Salem MA, El-Sabbagh AH, Elhadidy MR, Eldeen SMA. Quality of life of adult patients with severe burns. Burns. 2011 8//;37(5):776-89.
51. Masoumi M, Esfandiari E, Mousavi B. Quality of life in war-related hip disarticulation in Iran. Acta Orthopaedica et Traumatologica Turcica. 2014;48(5):527-32.
52. Saadat S, Javadi M, Divshali BS, Tavakoli AH, Ghodsi SM, et al. Health-related quality of life among individuals with long-standing spinal cord injury: a comparative study of veterans and non-veterans. BMC Public Health. 2010;10:6.
53. Yazicioglu K, Duyan V, Karatas K, Ozgu A, Yilmaz B, et al. Effects of sociodemographic characteristics, illness process, and social support on the levels of perceived quality of life in veterans. Military Medicine. 2006;171(11):1083-8.
54. Arango-Lasprilla JC, Krch D, Drew A, De Los Reyes Aragon CJ, Stevens LF. Health-related quality of life of individuals with traumatic brain injury in Barranquilla, Colombia. Brain Injury. 2012;26(6):825-33.
55. Arango-Lasprilla JC, Nicholls E, Olivera SL, Perdomo JL, Arango JA. Health-related quality of life in individuals with spinal cord injury in Colombia, South America. Neurorehabilitation. 2010;27(4):313-9.
56. Blanes L, Carmagnani MI, Ferreira LM. Quality of life and self-esteem of persons with paraplegia living in Sao Paulo, Brazil. Qual Life Res. 2009;18(1):15-21.
57. Coleman JA, Harper LA, Perrin PB, Olivera SL, Perdomo JL, et al. The relationship between physical and mental health variables in individuals with spinal cord injury from Latin America. Pm & R. 2015;7(1):9-16.
58. Lima DP, Simao Filho C, Abib Sde C, de Figueiredo LF. Quality of life and neuropsychological changes in mild head trauma. Late analysis and correlation with S100B protein and cranial CT scan performed at hospital admission. Injury. 2008;39(5):604-11.
59. Jovanovic M, Lakicevic M, Stevanovic D, Milic-Rasic V, Slavnic S. Community-based study of health-related quality of life in spinal cord injury, muscular dystrophy, multiple sclerosis, and cerebral palsy. Disability & Rehabilitation. 2012;34(15):1284-90.
60. Sudaryo MK, Besral, Endarti AT, Rivany R, Phalkey R, et al. Injury, disability and quality of life after the 2009 earthquake in Padang, Indonesia: a prospective cohort study of adult survivors. Glob Health Action. 2012;5:1-11.
61. Xie B, Xiao SC, Zhu SH, Xia ZF. Evaluation of long term health-related quality of life in extensive burns: a 12-year experience in a burn center. Burns. 2012;38(3):348-55.
62. Zhang LJ, Cao J, Feng P, Huang J, Lu J, et al. Influencing factors of the quality of life in Chinese burn patients: Investigation with adapted Chinese version of the BSHS-B. Burns. 2014;40(4):731-6.
63. Oh S-J, Hyeon Ku J, Gyun Jeon H, Shin H-I, Paik N-J, et al. Health-related quality of life of patients using clean intermittent catheterization for neurogenic bladder secondary to spinal cord injury. Urology. 2005 2//;65(2):306-10.
64. Amini R, Haghani H, Masoumi M. Quality of life in the Iranian Blind War Survivors in 2007: A cross-sectional study. BMC International Health and Human Rights. 2010;10 (1) (no pagination)(21).
65. Ghazwin MY, Chaibakhsh S, Latifi S, Tavakoli AH, Koushki D. Quality of life in Iranian men with spinal cord injury in comparison with general population. Archives of Neuroscience. 2015;2 (e21529).
66. Moghimian M, Kashani F, Cheraghi MA, Mohammadnejad E. Quality of life and related factors among people with spinal cord injuries in Tehran, Iran. Archives of Trauma Research. 2015 01 Sep;4 (3) (no pagination)(e19280).
67. Sabour H, Soltani Z, Latifi S, Norouzi-Javidan A, Emami-Razavi SH, et al. Injury-related characteristics and quality-of-life among Iranian individuals with spinal cord injury. Iranian Journal of Neurology. 2015;14(3):136-41.
68. Salah Eldin W, Hirshon JM, Smith GS, Kamal A-AM, Abou-El-Fetouh A, et al. Health-related quality of life after serious occupational injury in Egyptian workers: a cross-sectional study. BMJ Open. 2012;2(6):e-000413.
69. Polinder S, Haagsma JA, Belt E, Lyons RA, Erasmus V, et al. A systematic review of studies measuring health-related quality of life of general injury populations. BMC Public Health. 2010;10(1):1-13.
70. Wasiak J, McMahon M, Danilla S, Spinks A, Cleland H, et al. Measuring common outcome measures and their concepts using the International Classification of Functioning, Disability and Health (ICF) in adults with burn injury: A systematic review. Burns. 2011 9//;37(6):913-24.
71. ÜStÜN TB, Chatterji S, Bickenbach J, Kostanjsek N, Schneider M. The International Classification of Functioning, Disability and Health: a new tool for understanding disability and health. Disability and Rehabilitation. 2003 2003/01/01;25(11-12):565-71.
72. Goujon N, Devine A, Baker SM, Sprunt B, Edmonds TJ, et al. A comparative review of measurement instruments to inform and evaluate effectiveness of disability inclusive development. Disability and rehabilitation. 2014;36(10):804-12.
73. Üstün TB, Chatterji S, Kostanjsek N, Rehm J, Kennedy C, et al. Developing the World Health Organization disability assessment schedule 2.0. Bulletin of the World Health Organization. 2010;88(11):815-23.
74. Cieza A, Stucki G. Content comparison of health-related quality of life (HRQOL) instruments based on the international classification of functioning, disability and health (ICF). Qual Life Res. 2005;14(5):1225-37.
75. World Health Organization. WHOQOL-BREF: introduction, administration, scoring and generic version of the assessment: field trial version, December 1996. 1996.
76. Daaleman TP, Frey BB. The Spirituality Index of Well-Being: A New Instrument for Health-Related Quality-of-Life Research. Annals of Family Medicine. 2004;2(5):499-503.
77. Whoqol Srpb Group. A cross-cultural study of spirituality, religion, and personal beliefs as components of quality of life. Social Science & Medicine. 2006;62(6):1486-97.
78. Peterman AH, Reeve CL, Winford EC, Salsman JM, Tsevat J, et al. Measuring Meaning and Peace With the FACIT–Spiritual Well-Being Scale: Distinction Without a Difference? Psychological assessment. 2014;26(1):127-37.
79. Brady MJ, Peterman AH, Fitchett G, Mo M, Cella D. A case for including spirituality in quality of life measurement in oncology. Psychooncology. 1999 Sep-Oct;8(5):417-28.
2. Centers for Disease Control and Prevention. Measuring Healthy Days. Atlanta, Georgia: CDC; November 2000. Available from: http://www.cdc.gov/hrqol/pdfs/mhd.pdf.
3. Kaplan RM. The significance of quality of life in health care. Quality of Life Research,. 2003;12(1):3-16.
4. Kaplan RM, Ries AL. Quality of life: concept and definition. COPD: Journal of Chronic Obstructive Pulmonary Disease. 2007;4(3):263-71.
5. Segui-Gomez M, MacKenzie EJ. Measuring the public health impact of injuries. Epidemiologic Reviews. 2003;25(1):3-19.
6. Beaton DE, Bombardier C, Guillemin F ea. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000;25(24):3186-91.
7. Guyatt GH, Feeny DH, Patrick DL. Measuring Health-Related Quality of Life. Annals of Internal Medicine. 1993;118(8):622-9.
8. Kildal M, Andersson G, Fugl-Meyer AR, Lannerstam K, Gerdin B. Development of a brief version of the Burn Specific Health Scale (BSHS-B). Journal of Trauma and Acute Care Surgery. 2001;51(4):740-6.
9. Basic Documents. Constitution of the World Health Organization. Supplement, October2006.
10. Namjoshi MA, Buesching DP. A review of the health-related quality of life literature in bipolar disorder. Quality of Life Research,. 2001;10(2):105-15.
11. Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and quality of life. Medical care. 1989:S217-S32.
12. Ivers R, Bhandari M, Norton R. A call to research: Documenting the non-fatal outcomes of injury. Injury. 2014;45(6):921-2.
13. Guyatt GH, Kirshner B, Jaeschke R. Measuring health status: What are the necessary measurement properties? Journal of Clinical Epidemiology. 1992 1992/12/01;45(12):1341-5.
14. Guyatt G, Walter S, Norman G. Measuring change over time: Assessing the usefulness of evaluative instruments. Journal of Chronic Diseases. 1987 1987/01/01;40(2):171-8.
15. Sethi D, Aljunid S, Sulong SB, Zwi AB. Injury care in low- and middle-income countries: identifying potential for change. Injury Control and Safety Promotion. 2000 2000/09/01;7(3):153-64.
16. Krug EG, Sharma GK, Lozano R. The global burden of injuries. American Journal of Public Health. 2000;90(4):523-6.
17. WHOQOL - Measuring Quality of Life [Internet]. WHO. 1997 [cited 21 July 2015]. Available from: http://www.who.int/mental_health/publications/whoqol/en/.
18. Both H, Essink-Bot M-L, Busschbach J, Nijsten T. Critical review of generic and dermatology-specific health-related quality of life instruments. Journal of Investigative Dermatology. 2007;127(12):2726-39.
19. Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment. 2001 2001/02/28;5(4):156.
20. Gholami A, Jahromi LM, Zarei E, Dehghan A. Application of WHOQOL-BREF in measuring quality of life in health-care staff. International Journal of Preventive Medicine. 2013;4(7):809.
21. Gill TM, Feinstein AR. A critical appraisal of the quality of quality-of-life measurements. JAMA. 1994;272(8):619-26.
22. Guyatt GH, Veldhuyzen Van Zanten SJ, Feeny DH, Patrick DL. Measuring quality of life in clinical trials: a taxonomy and review. CMAJ: Canadian Medical Association Journal. 1989;140(12):1441-8.
23. Lin X-J, Lin IM, Fan S-Y. Methodological issues in measuring health-related quality of life. Tzu Chi Medical Journal. 2013 3//;25(1):8-12.
24. Muldoon MF, Barger SD, Flory JD, Manuck SB. What are quality of life measurements measuring? British Medical Journal. 1998;316(7130):542-5.
25. Schmidt L, Garratt A, Fitzpatrick R. Child/parent?assessed population health outcome measures: a structured review. Child: Care, Health and Development. 2002;28(3):227-37.
26. Lyons RA, Finch CF, McClure R, van Beeck E, Macey S. The injury list of all deficits (LOAD) framework–conceptualising the full range of deficits and adverse outcomes following injury and violence. International Journal of Injury Control and Safety Promotion. 2010;17(3):145-59.
27. Russell L. Poverty, Climate Change and Health in Pacific Island Countries2009 1 Sep 2016. Available from: http://ussc.edu.au/ussc/assets/media/docs/publications/0904_pacificislandspaper_russell.pdf.
28. Pulotu-Endemann FK. Fonofale Model of Health2001 1 Sep 2016. Available from: http://www.hauora.co.nz.
29. New country classifications by income level: 2016-2017 [Internet]. 2016 [cited 31 August 2016]. Available from: https://blogs.worldbank.org/opendata/new-country-classifications-2016.
30. Hoffman K, Cole E, Playford ED, Grill E, Soberg HL, et al. Health outcome after major trauma: what are we measuring? PloS one. 2014;9(7):e103082.
31. Fourtassi M, Hajjioui A, Ouahabi AE, Benmassaoud H, Hajjaj-Hassouni N, et al. Long term outcome following mild traumatic brain injury in Moroccan patients. Clinical Neurology & Neurosurgery. 2011;113(9):716-20.
32. Nguyen H, Ivers R, Cuong P. Health-related quality of life and recovery patterns among hospitalised injury patients in Vietnam. Qual Life Res. 2018;27:619-29. English.
33. Salah Eldin W, Hirshon JM, Smith GS, Kamal AA, Abou-El-Fetouh A, et al. Health-related quality of life after serious occupational injury in Egyptian workers: a cross-sectional study. BMJ Open. 2012;2(6):e-000413.
34. Sudaryo MK, Besral, Endarti AT, Rivany R, Phalkey R, et al. Injury, disability and quality of life after the 2009 earthquake in Padang, Indonesia: a prospective cohort study of adult survivors. Global Health Action. 2012;5:1-11.
35. Ukpong DI, Ugboko VI, Ndukwe KC, Gbolahan OO. Health-related quality of life in Nigerian patients with facial trauma and controls: a preliminary survey. British Journal of Oral and Maxillofacial Surgery. 2008 6//;46(4):297-300.
36. Ham OK. Psychosocial factors associated with lifetime experience of serious unintentional injury in South Korea. Public Health Nursing. 2008;25(1):37-45.
37. Oh SJ, Ku JH, Jeon HG, Shin HI, Paik NJ, et al. Health-related quality of life of patients using clean intermittent catheterization for neurogenic bladder secondary to spinal cord injury. Urology. 2005;65(2):306-10.
38. Ibhrahim John M, Conway Devin, Haonga Billy T, Eliezer Edmund N, Morshed S, et al. Predictors of lower health-related quality of life after operative repair of diaphyseal femur fractures in a low-resource setting. Injury. 2018;49(7):1330-5.
39. Hampton NZ. Disability status, perceived health, social support, self-efficacy, and quality of life among people with spinal cord injury in the People's Republic of China. International Journal of Rehabilitation Research. 2001;24(1):69-71.
40. Hu X, Zhang X, Gosney JE, Reinhardt JD, Chen S, et al. Analysis of functional status, quality of life and community integration in earthquake survivors with spinal cord injury at hospital discharge and one-year follow-up in the community. Journal of Rehabilitation Medicine. 2012;44(3):200-5.
41. Hu XB, Feng Z, Fan YC, Xiong ZY, Huang QW. Health-related quality-of-life after traumatic brain injury: a 2-year follow-up study in Wuhan, China. Brain Injury. 2012;26(2):183-7.
42. Luo DY, Ding MF, He CQ, Zhang HC, Dai Y, et al. Bladder management of patients with spinal cord injuries sustained in the 2008 Wenchuan earthquake. Kaohsiung Journal of Medical Sciences. 2012;28(11):613-8.
43. Wen H, Reinhardt JD, Gosney JE, Baumberger M, Zhang X, et al. Spinal cord injury-related chronic pain in victims of the 2008 Sichuan earthquake: a prospective cohort study. Spinal Cord. 2013 11//print;51(11):857-62.
44. Xie B, Xiao S-c, Zhu S-h, Xia Z-f. Evaluation of long term health-related quality of life in extensive burns: A 12-year experience in a burn center. Burns. 2012 5//;38(3):348-55.
45. Asadollahi R, Saghafinia M, Nafissi N, Montazeri A, Asadollahi M, et al. Anxiety, depression and health-related quality of life in those injured by landmines, Ilam, Islamic Republic of Iran. Eastern Mediterranean Health Journal. 2010;16(11):1108-14.
46. Ebadi A, Moradian T, Mollahadi M, Saeed Y, Refahi AA. Quality of Life in Iranian Chemical Warfare Veteran's. Iranian Red Crescent Medical Journal. 2014;16(5):e5323.
47. Ebrahimzadeh MH, Kachooei AR, Soroush MR, Hasankhani EG, Razi S, et al. Long-term clinical outcomes of war-related hip disarticulation and transpelvic amputation. Journal of Bone & Joint Surgery - American Volume. 2013;95(16):e114(1-6).
48. Ebrahimzadeh MH, Moradi A, Khorasani MR, Hallaj-Moghaddam M, Kachooei AR. Long-term clinical outcomes of war-related bilateral lower extremities amputations. Injury. 2015;46(2):275-81.
49. Ebrahimzadeh MH, Soltani-Moghaddas SH, Birjandinejad A, Omidi-Kashani F, Bozorgnia S. Quality of life among veterans with chronic spinal cord injury and related variables. Archives of Trauma Research. 2014;3(2):e17917.
50. Elsherbiny OEE, Salem MA, El-Sabbagh AH, Elhadidy MR, Eldeen SMA. Quality of life of adult patients with severe burns. Burns. 2011 8//;37(5):776-89.
51. Masoumi M, Esfandiari E, Mousavi B. Quality of life in war-related hip disarticulation in Iran. Acta Orthopaedica et Traumatologica Turcica. 2014;48(5):527-32.
52. Saadat S, Javadi M, Divshali BS, Tavakoli AH, Ghodsi SM, et al. Health-related quality of life among individuals with long-standing spinal cord injury: a comparative study of veterans and non-veterans. BMC Public Health. 2010;10:6.
53. Yazicioglu K, Duyan V, Karatas K, Ozgu A, Yilmaz B, et al. Effects of sociodemographic characteristics, illness process, and social support on the levels of perceived quality of life in veterans. Military Medicine. 2006;171(11):1083-8.
54. Arango-Lasprilla JC, Krch D, Drew A, De Los Reyes Aragon CJ, Stevens LF. Health-related quality of life of individuals with traumatic brain injury in Barranquilla, Colombia. Brain Injury. 2012;26(6):825-33.
55. Arango-Lasprilla JC, Nicholls E, Olivera SL, Perdomo JL, Arango JA. Health-related quality of life in individuals with spinal cord injury in Colombia, South America. Neurorehabilitation. 2010;27(4):313-9.
56. Blanes L, Carmagnani MI, Ferreira LM. Quality of life and self-esteem of persons with paraplegia living in Sao Paulo, Brazil. Qual Life Res. 2009;18(1):15-21.
57. Coleman JA, Harper LA, Perrin PB, Olivera SL, Perdomo JL, et al. The relationship between physical and mental health variables in individuals with spinal cord injury from Latin America. Pm & R. 2015;7(1):9-16.
58. Lima DP, Simao Filho C, Abib Sde C, de Figueiredo LF. Quality of life and neuropsychological changes in mild head trauma. Late analysis and correlation with S100B protein and cranial CT scan performed at hospital admission. Injury. 2008;39(5):604-11.
59. Jovanovic M, Lakicevic M, Stevanovic D, Milic-Rasic V, Slavnic S. Community-based study of health-related quality of life in spinal cord injury, muscular dystrophy, multiple sclerosis, and cerebral palsy. Disability & Rehabilitation. 2012;34(15):1284-90.
60. Sudaryo MK, Besral, Endarti AT, Rivany R, Phalkey R, et al. Injury, disability and quality of life after the 2009 earthquake in Padang, Indonesia: a prospective cohort study of adult survivors. Glob Health Action. 2012;5:1-11.
61. Xie B, Xiao SC, Zhu SH, Xia ZF. Evaluation of long term health-related quality of life in extensive burns: a 12-year experience in a burn center. Burns. 2012;38(3):348-55.
62. Zhang LJ, Cao J, Feng P, Huang J, Lu J, et al. Influencing factors of the quality of life in Chinese burn patients: Investigation with adapted Chinese version of the BSHS-B. Burns. 2014;40(4):731-6.
63. Oh S-J, Hyeon Ku J, Gyun Jeon H, Shin H-I, Paik N-J, et al. Health-related quality of life of patients using clean intermittent catheterization for neurogenic bladder secondary to spinal cord injury. Urology. 2005 2//;65(2):306-10.
64. Amini R, Haghani H, Masoumi M. Quality of life in the Iranian Blind War Survivors in 2007: A cross-sectional study. BMC International Health and Human Rights. 2010;10 (1) (no pagination)(21).
65. Ghazwin MY, Chaibakhsh S, Latifi S, Tavakoli AH, Koushki D. Quality of life in Iranian men with spinal cord injury in comparison with general population. Archives of Neuroscience. 2015;2 (e21529).
66. Moghimian M, Kashani F, Cheraghi MA, Mohammadnejad E. Quality of life and related factors among people with spinal cord injuries in Tehran, Iran. Archives of Trauma Research. 2015 01 Sep;4 (3) (no pagination)(e19280).
67. Sabour H, Soltani Z, Latifi S, Norouzi-Javidan A, Emami-Razavi SH, et al. Injury-related characteristics and quality-of-life among Iranian individuals with spinal cord injury. Iranian Journal of Neurology. 2015;14(3):136-41.
68. Salah Eldin W, Hirshon JM, Smith GS, Kamal A-AM, Abou-El-Fetouh A, et al. Health-related quality of life after serious occupational injury in Egyptian workers: a cross-sectional study. BMJ Open. 2012;2(6):e-000413.
69. Polinder S, Haagsma JA, Belt E, Lyons RA, Erasmus V, et al. A systematic review of studies measuring health-related quality of life of general injury populations. BMC Public Health. 2010;10(1):1-13.
70. Wasiak J, McMahon M, Danilla S, Spinks A, Cleland H, et al. Measuring common outcome measures and their concepts using the International Classification of Functioning, Disability and Health (ICF) in adults with burn injury: A systematic review. Burns. 2011 9//;37(6):913-24.
71. ÜStÜN TB, Chatterji S, Bickenbach J, Kostanjsek N, Schneider M. The International Classification of Functioning, Disability and Health: a new tool for understanding disability and health. Disability and Rehabilitation. 2003 2003/01/01;25(11-12):565-71.
72. Goujon N, Devine A, Baker SM, Sprunt B, Edmonds TJ, et al. A comparative review of measurement instruments to inform and evaluate effectiveness of disability inclusive development. Disability and rehabilitation. 2014;36(10):804-12.
73. Üstün TB, Chatterji S, Kostanjsek N, Rehm J, Kennedy C, et al. Developing the World Health Organization disability assessment schedule 2.0. Bulletin of the World Health Organization. 2010;88(11):815-23.
74. Cieza A, Stucki G. Content comparison of health-related quality of life (HRQOL) instruments based on the international classification of functioning, disability and health (ICF). Qual Life Res. 2005;14(5):1225-37.
75. World Health Organization. WHOQOL-BREF: introduction, administration, scoring and generic version of the assessment: field trial version, December 1996. 1996.
76. Daaleman TP, Frey BB. The Spirituality Index of Well-Being: A New Instrument for Health-Related Quality-of-Life Research. Annals of Family Medicine. 2004;2(5):499-503.
77. Whoqol Srpb Group. A cross-cultural study of spirituality, religion, and personal beliefs as components of quality of life. Social Science & Medicine. 2006;62(6):1486-97.
78. Peterman AH, Reeve CL, Winford EC, Salsman JM, Tsevat J, et al. Measuring Meaning and Peace With the FACIT–Spiritual Well-Being Scale: Distinction Without a Difference? Psychological assessment. 2014;26(1):127-37.
79. Brady MJ, Peterman AH, Fitchett G, Mo M, Cella D. A case for including spirituality in quality of life measurement in oncology. Psychooncology. 1999 Sep-Oct;8(5):417-28.
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Mar 29, 2019
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Health related quality of life following injury in low-and middle-income countries: A review of measures and concepts. PacHealthDialog [Internet]. 2019 Mar. 29 [cited 2025 Nov. 3];21(3):148-62. Available from: https://pacifichealthdialog.nz/index.php/phd/article/view/44
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Author Biographies
Iris Wainiqolo, University of Auckland
Research fellow
Section of Epidemiology and Biostatistics
School of Population Health
Bridget Kool, University of Auckland
Associate Professor
Associate Dean (Academic) - Faculty of Medical and Health Sciences
Vili Nosa, University of Auckland
Associate Professor
Head - Section of Pacific Health, School of Population Health
Shanthi Ameratunga, University of Auckland
Professor of Epidemiology
Section of Epidemiology and Biostatistics, School of Population Health
How to Cite
1.
Health related quality of life following injury in low-and middle-income countries: A review of measures and concepts. PacHealthDialog [Internet]. 2019 Mar. 29 [cited 2025 Nov. 3];21(3):148-62. Available from: https://pacifichealthdialog.nz/index.php/phd/article/view/44